New SSA Compassionate Allowances Expedite Benefits for Serious Conditions

The Social Security Administration has announced the addition of 52 new compassionate allowances conditions, primarily involving neurological disorders, cancers, and rare diseases. The Compassionate Allowances program fast-tracks disability decisions and is supposed to ensure that if you have one of the most serious disabilities that you will receive their benefit decisions within days instead of months or years.

SSA also noted that they “will continue to work with the medical community and patient organizations to add more conditions.” The Compassionate Allowances program has helped SSA approve “disability benefits for nearly 61,000 people with severe disabilities in the past fiscal year, and nearly 173,000 applications since the program began.”

The Compassionate Allowances initiative identifies claims where the nature of the applicant’s disease or condition clearly meets the statutory standard for disability. With the help of sophisticated new information technology, the agency can quickly identify potential Compassionate Allowances and then quickly make decisions.

Social Security launched the Compassionate Allowances program in 2008 with a list of 50 diseases and conditions. The announcement of 52 new conditions, effective in August, will increase the total number of Compassionate Allowances conditions to 165. The conditions include certain cancers, adult brain disorders, a number of rare genetic disorders of children, early-onset Alzheimer’s disease, immune system conditions, and other disorders.

As a New Orleans Social Security disability attorney, I am glad to see additional conditions added to the compassionate allowances list. Hopefully, this will help those in most need of disability benefits get them sooner and with much less delay than going through the entire disability process, which can take months (in the best cases) to years (in the worst cases).

If you or a loved one has been diagnosed with one of these conditions, you probably do not need a disability lawyer to help you get the benefits you need and paid for throughout your life. But if you have questions or concerns, you should speak with an attorney familiar with Social Security Disability.

The 52 New Compassionate Allowance conditions will be effective August 13, 2012. The complete list of Compassionate Allowance conditions are:

  1. Acute Leukemia
  2. Adrenal Cancer—with distant metastases or inoperable, unresectable or recurrent
  3. Aicardi-Goutieres Syndrome
  4. Alexander Disease (ALX)—Neonatal and Infantile
  5. Alobar Holoprosencephaly
  6. Alpers Disease
  7. Alpha Mannosidosis—Type II/III
  8. ALS/Parkinsonism Dementia Complex
  9. Alstrom Syndrome
  10. Amegakaryocytic Thrombocytopenia
  11. Amyotrophic Lateral Sclerosis (ALS)
  12. Anaplastic Adrenal Cancer—with distant metastases or inoperable, unresectable or recurrent
  13. Angelman Syndrome
  14. Aortic Atresia
  15. Astrocytoma—Grade III and IV
  16. Ataxia Telangiectasia
  17. Batten Disease
  18. Bilateral Retinoblastoma
  19. Bladder Cancer—with distant metastases or inoperable or unresectable
  20. Breast Cancer—with distant metastases or inoperable or unresectable
  21. Canavan Disease (CD)
  22. Carcinoma of Unknown Primary Site
  23. Cerebro Oculo Facio Skeletal (COFS) Syndrome
  24. Cerebrotendinous Xanthomatosis
  25. Child Neuroblastoma
  26. Child Non-Hodgkin Lymphoma
  27. Chondrosarcoma with multimodal therapy
  28. Chronic Myelogenous Leukemia (CML)—Blast Phase
  29. Cornelia de Lange Syndrome-Classic Form
  30. Corticobasal Degeneration
  31. Creutzfeldt-Jakob Disease (CJD)—Adult
  32. Cri du Chat Syndrome
  33. Degos Disease, Systemic
  34. Early-Onset Alzheimer’s Disease
  35. Edwards Syndrome (Trisomy 18)
  36. Eisenmenger Syndrome
  37. Endomyocardial Fibrosis
  38. Ependymoblastoma (Child Brain Tumor)
  39. Esophageal Cancer
  40. Ewings Sarcoma
  41. Farber’s Disease (FD)—Infantile
  42. Fibrodysplasia Ossificans Progressiva
  43. Follicular Dendritic Cell Sarcoma with metastases
  44. Friedreichs Ataxia (FRDA)
  45. Frontotemporal Dementia (FTD), Picks Disease -Type A—Adult
  46. Fucosidosis—Type 1
  47. Fukuyama Congenital Muscular Dystrophy
  48. Galactosialidosis—Early Infantile Type
  49. Gallbladder Cancer
  50. Gaucher Disease (GD)—Type 2
  51. Glioblastoma Multiforme (Adult Brain Tumor)
  52. Glioma Grade III and IV
  53. Glutaric Acidemia Type II (Neonatal)
  54. Hallervorden-Spatz Disease
  55. Head and Neck Cancers—with distant metastasis or inoperable or uresectable
  56. Heart Transplant Graft Failure
  57. Heart Transplant Wait List, 1A/1B
  58. Hemophagocytic Lymphohistiocytosis (HLH), Familial Type
  59. Hepatoblastoma
  60. Histiocytosis
  61. Hutchinson-Gilford Progeria Syndrome
  62. Hydranencephaly
  63. Hypocomplementemic Urticarial Vasculitis
  64. Hypophosphatasia Perinatal lethal form
  65. Hypoplastic Left Heart Syndrome
  66. I Cell disease
  67. Idiopathic Pulmonary Fibrosis
  68. Infantile Free Sialic Acid Storage Disease
  69. Infantile Neuroaxonal Dystrophy (INAD)
  70. Infantile Neuronal Ceroid Lipofuscinoses
  71. Inflammatory Breast Cancer (IBC)
  72. Junctional Epidermolysis Bullosa, Lethal Type
  73. Juvenile Onset Huntington Disease
  74. Kidney Cancer—inoperable or unresectable
  75. Krabbe Disease (KD)—Infantile
  76. Kufs Disease Type A and B
  77. Large Intestine Cancer—with distant metastasis or inoperable, unresectable or recurrent
  78. Late Infantile Neuronal Ceroid Lipofuscinoses
  79. Left Ventricular Assist Device (LVAD) Recipient
  80. Leigh’s Disease
  81. Lesch-Nyhan Syndrome (LNS)
  82. Lewy Body Dementia
  83. Lissencephaly
  84. Liver Cancer
  85. Lowe Syndrome
  86. Lymphomatoid Granulomatosis Grade III
  87. Malignant Brain Stem Glioma—Childhood
  88. Malignant Melanoma with metastases
  89. Malignant Multiple Sclerosis
  90. Mantle Cell Lymphoma (MCL)
  91. Maple Syrup Urine Disease
  92. Mastocytosis Type IV
  93. Medulloblastoma with metastasis
  94. Merkel Cell Carcinoma with metastasis
  95. Merosin Deficient Congenital Muscular Dystrophy
  96. Metachromatic Leukodystrophy (MLD)—Late Infantile
  97. Mitral Valve Atresia
  98. Mixed Dementias
  99. MPS I, formerly known as Hurler Syndrome
  100. MPS II, formerly known as Hunter Syndrome
  101. MPS III, formerly known as Sanfilippo Syndrome
  102. Mucosal Malignant Melanoma
  103. Multicentric Castleman Disease
  104. Multiple System Atrophy
  105. Myocolonic Epilepsy and Ragged Red Fibers Syndrome
  106. Neonatal Adrenoleukodystrophy
  107. Nephrogenic Systemic Fibrosis
  108. Niemann-Pick Disease (NPD)—Type A
  109. Niemann-Pick Disease-Type C
  110. Non-Small Cell Lung Cancer—with metastases to or beyond the hilar nodes or inoperable, unresectable or recurrent
  111. Obliterative Bronchiolitis
  112. Ohtahara Syndrome
  113. Ornithine Transcarbamylase (OTC) Deficiency
  114. Orthochromatic Leukodystrophy with Pigmented Glia
  115. Osteogenesis Imperfecta (OI)—Type II
  116. Osteosarcoma, formerly known as Bone Cancer—with distant metastases or inoperable or unresectable
  117. Ovarian Cancer—with distant metastases or inoperable or unresectable
  118. Pancreatic Cancer
  119. Paraneoplastic Pemphigus
  120. Patau Syndrome (Trisomy 13)
  121. Pearson Syndrome
  122. Pelizaeus-Merzbacher Disease-Classic Form
  123. Pelizaeus-Merzbacher Disease-Connatal Form
  124. Peripheral Nerve Cancer—metastatic or recurrent
  125. Peritoneal Mesothelioma
  126. Perry Syndrome
  127. Pleural Mesothelioma
  128. Pompe Disease—Infantile
  129. Primary Cardiac Amyloidosis
  130. Primary Central Nervous System Lymphoma
  131. Primary Effusion Lymphoma
  132. Primary Progressive Aphasia
  133. Progressive Multifocal Leukoencephalopathy
  134. Progressive Supranuclear Palsy
  135. Pulmonary Atresia
  136. Pulmonary Kaposi Sarcoma
  137. Rett (RTT) Syndrome
  138. Rhabdomyosarcoma
  139. Rhizomelic Chondrodysplasia Punctata
  140. Salivary Tumors
  141. Sandhoff Disease
  142. Schindler Disease Type 1
  143. Single Ventricle
  144. Small Cell Cancer (of the Large Intestine, Ovary, Prostate, or Uterus)
  145. Small Cell Lung Cancer
  146. Small Intestine Cancer—with distant metastases or inoperable, unresectable or recurrent
  147. Smith Lemli Opitz Syndrome
  148. Spinal Muscular Atrophy (SMA)—Types 0 And 1
  149. Spinal Nerve Root Cancer-metastatic or recurrent
  150. Spinocerebellar Ataxia
  151. Stiff Person Syndrome
  152. Stomach Cancer—with distant metastases or inoperable, unresectable or recurrent
  153. Subacute Sclerosis Panencephalitis
  154. Tabes Dorsalis
  155. Tay Sachs Disease—Infantile Type
  156. Thanatophoric Dysplasia, Type 1
  157. Thyroid Cancer
  158. Tricuspid Atresia
  159. Ullrich Congenital Muscular Dystrophy
  160. Ureter Cancer—with distant metastases or inoperable, unresectable or recurrent
  161. Walker Warburg Syndrome
  162. Wolf-Hirschhorn Syndrome
  163. Wolman Disease
  164. Xeroderma Pigmentosum
  165. Zellweger Syndrome

As a Louisiana Social Security disability attorney, I stand ready to help you with your questions concerning compassionate allowances.

Loyd J. Bourgeois
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Disability, Personal Injury, and Divorce Attorney
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